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So the last 24 hours have really run me down. Last night around 8:00pm I get a call from Jonathan informing that he was taking himself to the ER. If you know Jonathan you know that something really has to be wrong in order for him to do this. He had been saying for a few days that his arm and back hurt and now he was complaining of not being able to catch his breath or take a deep breath. When Jonathan had his wreck back in 2005 and collapsed both of his lung, we were informed then that he could sneeze wrong and it could collapse them again. He said he was in so much back that he was afraid that might have happened. After a 5hour ER visit he was diagnosed with inflammation of the lining of the lung and it also showed some fluid build up. Thank goodness it wasn't collapsed because I really didn't feel like driving to Ohio with Landon at 10:00pm. They sent him home or shall I say his home away from home with a Z-pack, inflammatory meds, and Vicodin! Who in there right mind gives a trucker Vicodin! He is feeling so better today, but still in some pain. Hopefully he will get some rest this weekend on the road somewhere. On to Landon......He had his monthly pulmo appt today and unless we need them again for anything, it was our last!!!! They said that Landon looked AWESOME!!!! and to keep up the good work. His weight today was 19lbs 9oz and was up from 19lbs 4oz from last Friday. Dr. Austin did change his albuterol and pulmicort nebulizers to inhalers now, which makes life so much easier. Now instead of having Landon sit with a mask that he hates for 15mins, we do 2 puffs and done. After our apt that lasted 3 hrs in which 2 1/2 hrs of those were us waiting. By the time Odessa and Dr. Austin came in to see Landon he was beyond ill. Afterwards, Landon and I met up with Nikki and gave her a break from the hospital by taking her to lunch. She has been there since July between her and Payton's hospital stays and is looking at at least another 2 months before thoughts of going home. Please continue to pray for Nikki and Princess Payton. Landon is ready to play with Miss P! Also continue to pray for Laura and Conner, Mollie and Tyler, and Tiffany and her little peanut! Well tomorrow is a big day for us. Tatum has her 1st dance recital! I can't wait to see how cute she is. I just wish her Jon Jon was here to see her!
So yesterday was my First Mother's Day and I had to keep myself from crying just about the whole day. I just kept thinking about how long the road was for me to become a mom and then all the obstacles Landon went through to stay here with me. Landon has given me so much strength with everything he has went through. Being a mom is probably the best gift anyone could have ever given me. Each time Landon smiles, or laughs at me melts my heart. I know he loves me and depends on me for everything and that makes being his mother that much more special. I know as he gets older that his dependability will grow less and less and that we will have our ups and downs because that's what mothers and their children do. But in the end no matter what I will still be his Mother! I love you Landon Bryce and I am so Thankful to be your mother! On another note....Landon had his 9month pictures with Mac Brown Thursday and unlike our 6 month these did not go as well. Landon had just woke up and was not in the mood to smile at anyone. At one point he even took up growling to try and get them to stop. We however did reach a milestone while we were there and that was we found our toes. Up to this point Jonathan and I had to put Landon's feet to his mouth but he found them himself and only wanted to play with his feet the rest of the time. Hopefully they got some good ones! We then on Friday went to Dr. Clifford for our 9month check-up. Landon is now up to 19lbs 5oz and 28in long. Overall we are very healthy! The Dr could not hear any wheezing for once and was very pleased with that. We however still have fluid buildup in our ears so we are yet on another round of antibiotics to try and clear that up. Hopefully it will work along with some different things we are trying at home will work. The Dr. did mention that if we continue to have this problem then we would have to discuss tubes. I know tubes are not that serious, but the poor boy has already been through enough and could really use a break from it all. On a negative note.....Landon has figured out that they nurse is not his friend and that she is the one giving him the shots! The poor boy took one look at her and started screaming. Jonathan and I could not put him down the entire visit at the Dr. So not what I wanted to happen. Oh well....We have our monthly visit to Vandy Pulmonology on Friday and can't wait to tell them how well Landon is doing.
So I am so behind on updating Landon's Blog. Not much has been going on in our house. We had a great Easter and the Easter Bunny brought Landon's lots of nice things. We went to the lung Dr. about two weeks ago and they were so impressed with Landon that they discontinued his use of oxygen all together! They did tell us to keep it around for awhile till we know for sure if he is going to need it again or not. We also went to Centennial this past Friday for our post NICU evaluation and although we are behind on a few things like rolling and sitting they are very impressed with him and feel he is not very behind for what he should be. At this appointment Landon weighed in at 19lbs 9oz and is 28in long. Whew no wonder my arms hurt so bad after toting him around. Afterwards we went up to the 7th and 8th floors to visit with the awesome nurses who took care of Landon while we were there. They could not get over how much he had grown and were so pleased to hear how well he was doing since his scare with pertussis. It is always so nice to visit with them because they get so excited everytime they see one of their babies doing so well. Other than that, we are just enjoying this wonderful weather and the chances we get to go outside now.
Sorry I haven't posted in awhile. Not too much going on in the household these days. Landon is doing very well. We just can't seem to get rid of that nasty cough but I have been reassured by the pediatrician that he is fine and that he is just going to be a wheezy kid till he out grows the trachmalcia. We went to the Pulmonologist on Friday and even though he hasn't been wearing his oxygen for quite sometime now the Dr has officially discontinued the use of oxygen at home. He asked us to keep all the equipement till our next apt in May just to make sure he doesn't get into any trouble. That is fine with us, we are just so glad that we are finally back to where we can go without it now. Other than that Landon is just trucking along. Current weight is 18lbs 9oz and 26 1/2 in long.I got the results from my biopsy and unfortunately it didn't come back as they wanted it so I will be going in May to have surgery. The reason we are waiting till May is so that I can have insurance and won't have to pay out of pocket for it. I am so frustrated with this news because I had finally gotten to where I wanted to have more kids and with this new development its not looking very promising.Well I hope everyone has a wonderful Easter. We are so excited about Landon's first Easter. Will post pictures tomorrow on facebook of Easter.
So just when you think things are going smoothly and the Drs feel comfortable with us getting out, Landon has to show off. Wednesday Landon started having alittle bit of a wet cough but it was very sporadic and not a sickly cough. He fought sleep the entire day and between me and Aunt LuLu only got about an hr worth of a nap. Thankfully he crashed about 7:30pm and I crashed soon after. Around 2 I woke up to what sounded like a barking dog, but was really Landon trying his best to cry. We were up pretty much the rest of the night from 2 with this barking cough. Yet it still was very sporadic and only happening while awake pretty much. By the grace of God Landon never required his oxygen to be turned on and was not huffing and puffing for air. Landon's normal pediatrician was not in today and I knew that I would be explaining to another doctor about 7 months worth of history on Landon before they can even get to where they can examine him. The Dr. we saw was very nice and honest. She informed me that she just did not feel comfortable sending him home being as she had never seen him and that she would be calling Vandy's ER and Landon's lung doctor to let them know we were on our way. Ughh the frustrations! Finally at the Er they do a very thorough workup and informed us that by looking at him he looks great. They said his lungs were pushing good air, he was not retracting and was satting 99-100 on room-air. They said that the only thing saying he was sick was this awlful cough. The only treatment they did for us was deep suctioning which he hated and a breathing treatment which he wasnt too fond of either. I am so thankful it wasn't anything because the last time we were in Vandy's ER I thought it was going to be some of the last moments with Landon. Pray for our lungs to heal!!!!
Well we made that long unpleasant trip to Nashville to the Cardiologist today. My nerves were so shot last night and this morning that I couldn't sleep and ended up being overly tired once we finally got home. Thankfully this appointment was anything but disappointing. Dr. Doyle was highly impressed with Landon and said he really couldn't hear what he saw on the Echo. So the plan for now is to follow up with them in a year and repeat the echo and if the PDA is still there then we will discuss medical options. He then proceeded to tell me that this did not mean surgery and that it can be treated other ways. The Dr. then proceeded to ask why Landon was still on his O2. I told him my thoughts about it and he was like if you feel comfortable with him off of it then let him stay off of it. We will see how tonight goes without it on if that stays the case or not. Other than that our little guy is now up to 17lbs 12oz and 26in long. He is such a little porker! On another note, just s a few people to keep in your prayers. Laura of course! She has officially beat both her and mine record for the longest time being pregnancy. Nikki and Payton. Payton is doing good, she is still having her days but she is getting stronger. Mollie and her pregnancy, Tiffany and her medical appointments.
Sorry its taken so long to update the results of his ECHO. Dr. Austin called on Monday and informed me that the Pulmonary Hypertension did not seem evident, however the PDA and hole is still there and that he would be referring us to the Cardiology Department. He did say that since both this issues are rather small, they may just tell him Thanks for the referral and to just watch. As of today we haven't received a call from them so im not sure if they will have him come in or if Dr. Austin will just watch it.
